Just a little update on Casey, he is doing well. A little tired of all the nurses, docs and volunteers - except for the playroom volunteers, those are his best friends. He's not really a people person any way, unlike Bennett, so all these people in his face all the time I think are starting to annoy him. He woke up this morning with a tummy ache, not uncommon for nausea to start this soon but he got some Benedryl and is out cold now.
So it looks like we will be coming up to Portland every week. Every 3 weeks he'll get his big dose of chemo and for the first 4x we'll stay overnight. His immune system won't be as strong and he's at risk for pneumonia so we would appreciate it if anyone who wants to see him be healthy and have clean hands.
We are so appreciative of all the prayers and love. I really believe in the power of prayer and believe that is what helped us get the prognosis we did. He's in Group 1 of ERMS which is the best case scenario for his situation. He has a 95% cure rate and his CT and Bone scan were clear! As well as his Bone Marrow test. His oncologist did say he has a 50/50 chance of needing either a blood transfusion or bone marrow transfusion during his treatment but he doesn't take that kind of thing lightly and will do everything he can to prevent that. Let's pray we won't have to worry about that.
I feel so blessed with our situation, looking at all the other sick kids here at Doernbechers, it could be a lot worse. We're pretty lucky. My heart goes out to all the families here. But there's a special kind of spirit here though and you can really feel angels walking the halls.
Been thinking about you and your family a lot lately... Can't even fathom everything you have been through. Please know you are in our prayers [Ethan asks, "Who's the Webb family?] We're not too far from Doernbechers and I would love to come visit some time and keep you company if you'd like it - I'm not sure of the rules with visitors, though, so just let me know what works best.
ReplyDelete{{foot wave}}
:) I would love to see you! The floor he's on is full of low immune system kids so they ask that everyone that comes to visit be really healthy, no runny noses or coughs even. Even if it's just that and not a cold because you could pass along stuff you don't even have. Even if you have a cold sore they won't let you in. But I will let you know the next time we have an over nighter and you're welcome to drop by. {{foot wave back at ya!}} :)
ReplyDeleteThinking about you guys. You are always in my prayers.
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